Privacy Policy

Privacy Policy

Last Updated Date: 11/23/2020

Appilepsy is designed to help caregivers and patients manage epilepsy. This Privacy Policy applies to the websites, mobile application, and services operated by Appilepsy LLC (“Appilepsy,” “we,” “us” or “our”), where this Privacy Policy is posted (collectively, the “Sites”). BY USING THE SITES, YOU CONSENT TO THE TERMS AND CONDITIONS OF THIS PRIVACY POLICY. IF YOU DO NOT AGREE TO THE TERMS AND CONDITIONS OF THIS PRIVACY POLICY, PLEASE DO NOT USE THE SITES.

Information Collected

This Privacy Policy applies only to information collected on the Sites. “Personally Identifiable Information” or “PII” is information that identifies you personally, such as your name, address, telephone number, or email address. Appilepsy collects and stores the PII that you have provided to us. We will retain PII provided for as long as it is needed to fulfill the purpose for which it is collected. 

We collect and store the following PII. If you do not want Appilepsy to collect your PII, please do not provide it to us. The information we collect from you may include:

  • Contact information. Email address, first and last names, telephone number, and address information if you provide it via the Sites, such as to sign up for services or an account or when you contact us with a question;
  • Caregiver contact information. Email address of caregiver if you request us to send your PII to a caregiver.
  • Health log information. Seizure log and medication log, which includes information about seizures such as the seizure length, rescue medications, and time it occurred, and information about medications such as dosage and refill dates. 
  • Demographic information. This may include your gender, age, zip code and interests, which you voluntarily provide to us on the Sites. We may use this information to analyze trends to ensure the information provided by the Sites meets your needs; 
  • IP address, which we may use to deliver our webpages to you upon request;
  • MAC address, which we may use to connect to your Bluetooth device;
  • Cookies, which may be used to collect information about your activity on the Sites. Please see our section titled “Cookies” below for more information;
  • Web Beacons (also known as “clear gifs,” “web bugs” or “pixel tags”), which are tiny graphics with a unique identifier, similar in function to cookies, and are used to count users who have visited certain pages of the Sites. When used in HTML-formatted email messages, web beacons can tell the sender whether and when the email has been opened. In contrast to cookies, which are stored on a user’s computer hard drive, web beacons are embedded invisibly on web pages; 
  • App installation ID. When you download and install our app on your mobile device, we assign a random number to your app installation. We do use this random number in a manner similar to our use of cookies and web beacons. If you do not want us to use the random number for the purposes for which we use cookies and web beacons, please do not install our app;
  • Technical information, such as your device’s operating system and error logs; and/or
  • Sites usage data, such as language of your operating system, the Internet browser you are using, geo-location data, and data on your use of the Sites.

Cookies, Tracking, and Ads

Like many websites, we use “cookies” to ascertain which web pages are visited and how often, to make our Sites more user friendly, and to give you a better experience when you return to the Sites. For example, cookies allow us to save your password so you do not have to re-enter it every time you visit our Sites. Most browsers accept cookies automatically but allow you to disable them. Please check your browser and browser settings to determine where these types of cookies are stored and whether and how they may be deleted. The Network Advertising Initiative also offers a means to opt-out of a number of advertising cookies. Please the Network Advertising Initiative’s website here to learn more and opt-out. In any event, if you reject our cookies, you may still use the Sites, but you may be limited in some of the features. We may also work with service providers that use cookies and web beacons to collect information, and to serve advertisements to you across the Internet based on that information.

How We Use Information Collected via the Sites

We use PII that is collected on these Sites primarily for the following purposes:

  • To complete a transaction or service requested by you;
  • To share your PII with a caregiver if requested by you;
  • To notify you about a material change to this Privacy Policy, if necessary;
  • To notify you about services that may be of interest to you;
  • To contact you in response to questions submitted to us; 
  • To protect our interests, for example, to take precautions against liabilities, investigate, and defend ourselves against any third party claims or allegations;
  • To protect against fraud, protect the security or integrity of our service, and to protect the rights and property of Appilepsy, its users, and/or partners; 
  • To enforce our policies, including but not limited to our Privacy Policy and Terms of Use; 
  • To comply with legal and regulatory requirements; or
  • As otherwise disclosed at the time of collection.

We may use de-identified, aggregate data to advance research on epilepsy. 

How We Share the Information Collected via the Sites

We may share or disclose your PII in the following instances:

  • As requested by you. For example, if you email us a question, we may use your email address to process your request and respond to your question.  Or, if you ask that information is shared with a third party or printed, we will assist you with that.  As another example, we may use your PII to help you identify epilepsy patterns. 
  • To unaffiliated third-party service providers, agents or independent contractors who help us maintain our Sites and provide other administrative services to us (including, but not limited to, hosting and website content management system services, and maintaining and analyzing data). Because such unaffiliated third-party service providers that help us administer our Sites may have access to users’ PII, if you do not wish for our unaffiliated third-party service providers to have access to your information, please do not submit any PII to us.
  • To comply with the law or in the good faith belief that such action is necessary in order to conform to the requirements of law or comply with legal process served on us, protect and defend our rights or property, including the rights and property of Appilepsy and its Sites, or act in urgent circumstances to protect the personal safety of our end users.
  • To third party health apps that you connect with Appilepsy. We will use information that you consent that we receive from those third party health apps for research purposes, internally in order to improve our services, and in the form of aggregated and/or analytical data as described in this Privacy Policy, and may transfer this data to third parties for such purposes. We may provide our users with the ability to share their Appilepsy data with other authorized services on their device after receiving their consent. Please note that when you share information with third party apps, such information will be subject to their privacy policy, over which Appilepsy has no control. Please visit the respective privacy policies of third party apps that you connect with Appilepsy. 
  • To third parties as part of any corporate reorganization process including, but not limited to, mergers, acquisitions, and sales of all or substantially all of our assets. You grant us the right to disclose or assign the PII collected via the Sites to third parties following completion of such transaction and/or during the assessment process pending transfer. If transferred in such a case, the third party will abide by the terms and conditions of this Privacy Policy.
  • To protect against potential fraud, we may verify with third parties the information collected from these Sites. In the course of such verification, we may receive PII about you from such services.

We may share and disclose de-identified and aggregate data to the following:

  • Academic researchers and other non-profit organizations and foundations researching epilepsy and possible triggers.

Except as described in this Privacy Policy, we do not otherwise use, share or otherwise disclose your PII to any third parties. When we do share information with others, we take steps to require them to treat your information securely and in accordance with applicable law.

International Transfer of Information

If you choose to provide us with PII, we may transfer that information to affiliates or to other third parties, across borders, and from your country or jurisdiction to other countries or jurisdictions around the world. If you are visiting from the European Union or other regions with laws governing data collection and use that may differ from U.S. law, please note that you are transferring your PII to the United States, which does not have the same data protection laws as the EU and does not offer the same rights and protections as EU law, and by providing your PII you understand that: (i) we will use your PII for the uses identified above in accordance with this Privacy Policy; and (ii) we will transfer your PII to the United States as indicated above, in accordance with applicable law.


We may communicate with users of the Sites who subscribe to services we offer on a regular basis via email. For example, we may use your email address to confirm your account, to send you information about changes to our services, and to send notices and other disclosures as required by law. Generally, users cannot opt-out of these communications, but they will be primarily informational in nature rather than promotional. However, we provide you the opportunity to exercise an opt-out option if you do not want to receive other types of communication from us, such as emails or updates from us regarding new services offered on the Sites. The opt-out choice may be exercised by ticking or un-ticking the appropriate box if such checkbox is available at the points where PII is collected or by contacting us. We will process your unsubscribe as soon as possible, but please be aware that in some circumstances you may receive a few more messages until the unsubscribe is processed. You also may opt-out of receiving such emails by clicking on the “unsubscribe” link within the text of the email.

Third Party Websites

This Privacy Policy applies solely to information collected on the Sites. The Sites may contain links to other websites. We are not responsible for the privacy practices or the content of these other websites. If you have any questions about how these other websites use your information, you should review their policies and/or contact them directly.


No data transmissions over the Internet can be guaranteed to be 100% secure. Consequently, we cannot ensure or warrant the security of any information you transmit to us and you understand that any information that you transfer to Appilepsy is done at your own risk. Once we receive your transmission, we make reasonable efforts to ensure security on our systems. However, please note that this is not a guarantee that such information may not be accessed, disclosed, altered or destroyed by breach of such firewalls and secure server software. If we learn of a security systems breach we may attempt to notify you electronically so that you can take appropriate protective steps. By using the Sites or providing PII to us you agree that we can communicate with you electronically regarding security, privacy and administrative issues relating to your use of these Sites. We may post a notice on our Sites if a security breach occurs. We may also send an email to you at the email address you have provided to us in these circumstances. Depending on where you live, you may have a legal right to receive notice of a security breach in writing.

Your California Privacy Rights and How We Respond to Do Not Track RequestsThe “Do Not Track” (“DNT”) privacy preference is an option that may be made in some web browsers allowing you to opt-out of tracking by websites and online services. At this time, global standard DNT technology is not yet finalized and not all browsers support DNT. We therefore do not recognize DNT signals and do not respond to them.


The Sites are not intended for use by persons under the age of 13. If you are under the age of 13, please do not use the Sites. In the event that we learn that a person under the age of 13 has provided us with PII, we will delete such PII.

Changes to this Privacy Policy

We reserve the right to change this Privacy Policy from time to time. When we do, we will revise the “last updated on” date at the top of this Privacy Policy. If we make material changes to this Privacy Policy, we will send a notice to the primary email address specified in your account and/or place a prominent notice on the Sites.

Contact Us
If you have any questions about this privacy policy or our privacy practices, please contact us at: